A prayer has been answered for us. I e-mailed Dr. Wilfong on a whim, not expecting to really even hear back from him, and his nurse called to offer us an appointment!! So the three of us will be headed to Houston next week to have an EEG on Thursday and our consultation on Friday.
Even better news, is that the second medication we have started (topimax) seems to be making a difference, as Braden's seizures are far less severe in intensity, and he has longer periods that are seizure-free!!
We are so excited, it's like Christmas for us, that we feel we will be given the best shot at long-term and short-term solutions with this leading specialist on our case. It may even be more for mom & dad's reassurrance that we are getting the best possible care for Braden, but he will reap the benefits. Thank you for those who have continued to pray for us.
Some additional fun facts about Braden as he grows, is that he is starting to use his voice a lot more to coo at you or offer disapproval of whatever change you are putting him through:-) When he dreams, he raises his eyebrows, wrinkles his forehead, and will purse his lips like he is blowing air kisses at you - it is adorable to watch. He is spending more time on his tummy, showing improvement in the strength of keeping his head up (but still cannot lift it forward at his own will), and is finally relaxing those long legs and stretching them out. He is getting so chunky on the steroids, he is getting more chins, and rolls on his arms and legs, which are just too cute - he is 13 pounds now and seems so substantial to hold these days! He grew out of his first newborn outfit, and we have to change the straps on his carseat to accomodate this growing boy.
We meet again with our local neurologist on Monday, so we may have an update for you there. Right now we are still interviewing sitters for Braden, and attempting to contact state agencies to see if we qualify for financial assistance to be able to provide him quality in-home daycare that is one-on-one if at all possible. We will keep you all posted as things progress here, and thanks for all you wonderful postings, encouragement, and checking our blog!
Much love -
Kodi, Brad, & Braden
2 comments:
This one (picture) will for sure go in our "Braden collage" on our refrigerator! What a treasure! We are rejoicing with you over your awesome news of an appointment in Houston and a noticable difference in the seizures. Awesome power of prayer!
John 16:33 (Amplified Bible)
33. I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world. [I have deprived it of power to harm you and have conquered it for you.]
Love and prayers,
Tonya
We need to see a picture of his arm & leg rolls.
Gram
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