Thursday, August 24, 2006
Still here for a bit
Today we will share pictures of the room we are in… note all the little writings on the wall – those are all of the cards you have sent Braden, his collection continues to grow! The other picture is from our last day in the PICU, with our nurse Kristy, we miss her already.
We go the results from our EEG, and it showed multi-focal seizure activity. They have decided to increase the dosage of Kepra, as it is the right medicine for the seizures he his having, so they are hoping the increased dosage will stop his seizures altogether, as we have seen an increase in activity since switching to Kepra. They will continue to increase the dosage over the coming days, and do another EEG on Tuesday to see where we are. Kepra can be taken orally (through his G-tube), so it is unlikely we will get a pick line.
The pediatric opthamalogist, says Braden has perfect eyes, so we should not need any surgery to correct anything anatomical. The renal specialist wanted to wait to determine a course of action after we had an EKG done, and we had that done today, it lasted for two hours! We are hoping that the endurance does not mean we will have difficult news ahead, but we will see what tomorrow brings.
Today his secretions have been MUCH less significant, and the medicine we are on to reduce them seems to be working. We no longer have a personal respiratory therapist spending their entire day with usJ We have barely met any of them since coming to the PCU, so it seems to be working.
We will be here through the middle of next week, at minimum. Some friends from church are heading this way through Houston and dropping a care package from our entire Sunday School class, it will be nice to have something from our friends back in BR. They will be dropping in on us tomorrow afternoon.
Stay tuned for the next update tomorrow, once we hear from the cardiology and renal team about our EKG, we will send an update. Please continue to keep us all in your prayers during this stressful time.
Kodi, Brad, Braden