Home sweet home. We have been home for little over an hour and in that time we have had one dirty diaper and had our 3pm feeding. He is resting in his room as a big boy. After 24 days of waiting and wondering he is finally home. We have a mountain of appointments to make next week with our specialist who are stilling working on our case. We are just fine with that because he is now home. We still need to be cautious about how we handle him and his feedings at home. His feedings are not that technical, but we do need to be careful on how we handle his tube and his “button” on his tummy. Last night was the first of many that we feel we will have with little or no sleep. He made sure that Mommy and Daddy knew who the boss was before we got home. We learned a lot about his pump and how to use that with him yesterday. The time flew by because so many of his nurses wanted to say good-bye before we left. It was great to know that he had made so many friends and people that we interacted with for three weeks were congratulating us as we walked down the hallway. Lastly, this will not be our final post. We still have some outpatient exercises to work on so, we will still continue to update the blog as we get updates.