Sunday, August 17, 2008

Rollercoaster day

Well, he had a great night, but this morning he gave us a blue spell after trying to transition him from vapotherm to BIPAP, and we had to bag him. After some serious suctioning we got out a LOT of THICK mucus. Last night we discovered that at some point the vapotherm had been accidentally turned off. We noticed it last night before we left, but it dried him out pretty good, and I suspect is what made things so difficult this morning.

After a blood gas at 80, his medical team decided to put him back on the vapotherm. We have decided to just attack aggressively with lots of humidification, cough assist treatments every 2 hours, breathing treatments every 2 - 4 hours, and suctioning as needed. He seems to have stabilized by early this afternoon, as the blood gas came back at 54.

Our little tiger cub has been crying most of the day, and while this is out of character for him, the nurse assured us that sometimes kids with respiratory conditions who come off the vent grunt or coo or sing to help keep their airway open. So while it is just so sad to hear him cry, it gives is hope that Baby Bee might developing some cognative skills, and that's exciting! He really sounds like a little tiger cub when he cries, I'll try to find a place to post it on-line that's a little more private than "youtube".

Tonight we have taken gas to try to establish a "baseline" for Braden, and his CO2 was at 69. We will take another in the morning to see where he is. Keep the prayers coming, as today has not been easy... we thought we might get to go home, but now we will try again tomorrow or maybe the next day, providing he keeps having good nights, and can wean him off the vapotherm. He is certainly getting pity points with his therapists and nurses with the tiger cub cry, let's hope it's helping him feel better too:-)

Keep the faith!!
The Wilsons


Anonymous said...

Had to check in on the little man before going to bed. I hope he's feeling much better by morning.

Debbie T

B said...

Thanks for the update! I love the pics! Give Braden a kiss from me!

Doris Glass Heckert - Jackson's Mommy said...

I heard the tiger cub cry and it is so cute and pitiful all at the same time----all our prayers and love, the heckerts

Tonya Crawshaw said...

Thanks so much for the updates...I anxiously await them! Keep fighting, Little Tiger Cub! We're cheering you on and praying you through this like crazy. Dad and Mom, you're amazing and we all know WHO is giving you strength, and courage and peace. We're praying for you too! Thanks for sharing your lives with us and inspiring us to be as strong and courageous as you! We love you but Jesus loves you even more!

Anonymous said...

Thanks for keeping us informed. Mom you need to rest too....Bradon is a little tiger..........that's why he sounds like one.

Our thoughts and prayers are with you all.

Ray and Dorothy