Sunday, June 04, 2006
Sunday 6/4 Update
Well, we had a rough week. Braden was out of sorts for a few days, of course starting the day after our pediatrician visit, so we headed back on Friday. The pediatrician put Braden on some Zantac for his reflux, which has seemed to help the intensity of the pain he was experiencing. Then it was off the neurologist for our 6 week visit, and she sent us down for another MRI. We got the news that no parent ever anticipates getting... that your child has brain damage. All the doctors are convinced that he suffered "cortical atrophy" the last week of pregnancy. They said it was nothing I could have done, but that we dodged a bullet, in that in lots of cases where this happens, the baby does not survive at all, and is stillborn. Somehow Braden fought his way out of it to ultimately survive, but we don't know yet at what cost. We are certain he will be slow to develop, but are not sure yet what areas have been affected... his brain was fully formed normal, but is not growing like it needs to be. My own hunch is that we will have some motor skills that will come slower, but only time may tell about speech and cognative functions as well. Our own neurologist suggested we get a second opinion, and we plan on doing that sometime after the 3 or 6 month mark, when we know better what milestones we are missing. At this stage, we feel like it is still too early to spend the time/money/emotions/energy on that just yet, as the probability of a diagnosis at this point is still very small.
We have made progresses in some areas like sucking and muscles, but still lack some muscle tone in a few areas and can't lift our head. We are hoping the Occupational Therapist can give us exercises to work on those things, and the neurologist may send us for yet another more specific metabolic panel to rule out disorders. We go back to her in 6 weeks.
Keep us in your prayers, we continue to enjoy every new day with our precious baby boy, and pray to find the understanding in the lessons God has in store for all of us. Some of our favorite time together is post-bath time, when he is very lucid and sweet and SOOOO relaxed, so I have shared a post-bath photo with you. You can see the scars from his surgery and his feeding "button" too. Hope you enjoy,
Mommy, Daddy B, and Baby Bee