Today we are 8 weeks old, and have a few updates to share. First the depressing news... the neurologist called today, and although our first metabolic panel came back OK, the lab forgot to do a second part of it, so unfortunately, we have to go back AGAIN for them to take more blood. The doctor feels awful about it, but they are trying their best to get us some answers, and they feel it's best to do another round of testing.
We saw the surgeon last week, who sent us for the Upper G.I. yesterday - and the results showed that Braden's nissen fundiplication surgery is holding successfully, and doing what it is supposed to do. We also saw the ENT yesterday, who was unable to give us much of anything, but did give us a little hope. She said that although Braden has this paralyzed vocal cord, based on how loud he is (who would have guessed), that it is probable that if it remains paralyzed, the other vocal cord will get stronger to compensate for it... or it could possibly come out of it's temporary paralyzed state. Worst case, there are surgeries that could happen as an adult, but that was not a normal scenario. So we go back in 3 months, and at that time, the doctor will be able to tell us if it is temporary or permanent, as he will have grown enough to give us those answers.
Today we go for our first home care provider visit, wish us luck as we try to locate the best possible care for Braden while mommy goes back to work - someone who can give him the extra special attention he needs to make his parents feel more at ease about leaving him with someone else.
Tomorrow we go for our first professional photo shoot - YEAH!! We go back to the pediatrician tomorrow too, we are hoping to have gained some weight. Now that we finally have our hunger under better control, Braden is in a much better temerament more often, and we hope the doctor lets us keep increasing our feedings, as Braden has been a MUCH happier camper lately!! We will update the blog again once we know something more about our bloodwork. As last posted, we got to take our first 'real bath', so I have posted some pictures to share - enjoy!
5 comments:
Happy 8 week birthday!
I'm still following your story and am glad for the good news when you get it! I hope you find someone to take care of Braden that is AWESOME! It's good to hear that he's happy more often these days. Thanks for keeping us posted!
Brandy, Jeff, and the girls
Happy Birthday Braden!!! Aunt Jeannie, Uncle Dave and the kids think of you every day and hope that you are getting stronger and stronger. We should have known that feeding you more would make you happier since eating is such a big part of our family get togethers. I haven't seen a Patee/Wilson push away from the table yet.
We will keep praying for the doctors and their knowledge and ability to make you well. Let us know how things go and send more pictures.....we LOVE the pictures.
Love,
Aunt Jeannie
I cannot wait to hold this little man! Love you!
Thanks for the update...I look for your updates and love to get pictures --- we continue to hold you close in thought and prayer. We'll say some extra prayers as you begin the search for a "Nana-Debby-like" caregiver for sweet boy Braden. Hugs to you all! Tonya
Thanks for sharing all of the news and pictures. What a sweet little guy. We wish we were closer so we could get to know him better.
Love, Grandma and Grandpa Wilson
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