Tuesday, June 20, 2006
8 Week Update
Today we are 8 weeks old, and have a few updates to share. First the depressing news... the neurologist called today, and although our first metabolic panel came back OK, the lab forgot to do a second part of it, so unfortunately, we have to go back AGAIN for them to take more blood. The doctor feels awful about it, but they are trying their best to get us some answers, and they feel it's best to do another round of testing.
We saw the surgeon last week, who sent us for the Upper G.I. yesterday - and the results showed that Braden's nissen fundiplication surgery is holding successfully, and doing what it is supposed to do. We also saw the ENT yesterday, who was unable to give us much of anything, but did give us a little hope. She said that although Braden has this paralyzed vocal cord, based on how loud he is (who would have guessed), that it is probable that if it remains paralyzed, the other vocal cord will get stronger to compensate for it... or it could possibly come out of it's temporary paralyzed state. Worst case, there are surgeries that could happen as an adult, but that was not a normal scenario. So we go back in 3 months, and at that time, the doctor will be able to tell us if it is temporary or permanent, as he will have grown enough to give us those answers.
Today we go for our first home care provider visit, wish us luck as we try to locate the best possible care for Braden while mommy goes back to work - someone who can give him the extra special attention he needs to make his parents feel more at ease about leaving him with someone else.
Tomorrow we go for our first professional photo shoot - YEAH!! We go back to the pediatrician tomorrow too, we are hoping to have gained some weight. Now that we finally have our hunger under better control, Braden is in a much better temerament more often, and we hope the doctor lets us keep increasing our feedings, as Braden has been a MUCH happier camper lately!! We will update the blog again once we know something more about our bloodwork. As last posted, we got to take our first 'real bath', so I have posted some pictures to share - enjoy!