First Smile and Red Hair?

This past week brought some positive news from our therapist. We are getting more flexibility and our stretches at home are making a big difference! We are getting a stronger sucking reflex, so the therapist wants to try a swallow study in August, which could mean our feeding tube could come out sooner:-) Braden is gaining weight, he is now 11 lbs 4 oz and I think he is 'fattening' up to be a chunky baby. I caught one of his first smiles on camera, so I thought I would share. He is starting to enjoy his own reflection, and his hair seems to be turning more strawberry blonde every day!! Gram Betshchart and Great Grandpa Wilson have passed on more genes than perhaps any of us anticipated. He is more satisfied on our new feeding schedule and continues to be more pleasant throughout the day. He used to get a little jumpy when being 'patted', and that seems to have subsided now too!!

So we continue to have hope that he will continue to thrive and regenerate any damage suffered but only time will tell. We are off to the nuerologist tomorrow and will get the results of the extended panel - so please keep your prayers strong for us. We will make a new post when we have news to share from that appointment. This week we head to "train" the lady who will be taking care of Braden... she lives on the way to work, around the corner from ur subdivision, and if you can believe it, has a daughter that lives in Derby! Small world... we will share more with everyone soon - thanks for your continued support!

Braden, Kodi, and Brad