Monday, September 29, 2008
Most of you know we have been patiently, or not so patiently waiting for our "mythical and magical" CHAIR to get here. The Special Tomato seating positioning chair and stroller base with tray table and umbrella are HERE!!!!
We put Braden in it for the very first time this afternoon!!! Mommy wheeled him through the PICU and he was just taking the new scenery all in. He seems to be very comfortable and content in his new chair! He's even sleeping in it as we speak...
Braden has been trying to "sit up" all on his own, and so he's pulling himself forward out of the chair a little bit, so we will be talking to our Occupational Therapist, Gayla about helping us create a velcro padded headpiece to keep Braden in the correct position. After all we've been through in trying to get the chair, this is certainly a day of celebration in the Wilson "pod" in the PICU. His nurses and respiratory therapists were all so very excited for us too - they haven't seen a chair like his before:-)
It's looking like we won't get to leave on mommy's proposed timeline, but the good news is that we have discussed an "exit strategy", so we have started putting some things in place for that. Tell George if he needs help planning an exit strategy for our troops, give me a call, I'm all for getting a plan in place for us to stay here no longer than necessary:-) We just HAD to get the pictures up today to share, for all of you have been as anxious as we have to get the chair. Praise God for the small things that make us happy, like we are accomplishing something important for Braden.
His whole medical team is excited to have the chair to alternate positioning in the bed with positioning in the chair throughout the day, to hopefully help get rid of all that "junk" sitting in his lungs and clear out this pneumonia at a quicker pace. Please keep praying for our health, and for home nursing to become available, and for our ventilator to be available soon so we can train on it and go home. (Now it's looking like our home vent might not be ready in the timeline we were originally told.) Thanks for keeping us in your thoughts and prayers.
Kodi, Brad, & Braden, our "special tomato"