Wednesday, January 10, 2007

Back from Break with a bang




Our Christmas holiday was such a wonderful time with our families, it was hard to come back to daily life here. Braden traveled just fine on the trip home, but he seems a little more settled now that we are getting back into routine with him.

Some neat news about Braden, is that the poor little guy is pretty fussy these days - he is trying to get some teeth! Since he is not a baby that picks things up and puts them in his mouth, we are having to hold his teething toys for him, so he can chomp down on things, but he seems to enjoy the cool ones from the fridge, and likes this one we got that vibrates when you chomp down on it. I was super-excited to see that Braden is figuring out cause-and-effect with this toy!
We think he has been fighting a virus on top of it, as towards the end of our trip, he was spiking a fever above the 102 mark. So on our return, we have been treated with injectable antibiotics, and he seems to be responding very well. We are also learning that when Braden is feeling pretty good, he will only have one or two seizures a day - praise God!! PROGRESS!!


We visited the pulmonologist who has reccommended we put Braden on another few machines, and I will share more about them once they get here. One is a "cough-assist" to help Braden clear things that my be a little deeper in the throat. The other is a 30-day heart monitor. Braden started having a new kind of seizure in the past few months, that makes his heart rate really drop low, but once the seizure is over, he recovers. What the doctor wants to know... is if it is a heart arrythmia that is causing a seizure, or a nuerological issue that is causing autonomic seizures that result in the drop in heart rate. So this should determine the cause... please pray that Braden's heart will be just fine, and these issues are nuerologically related.

We had some excitement last night, as I went to bible study and Brad had a ball game, our friend Stephanie agreed to watch Braden. She is a quite capable and knowleadgeable baby sitter, but nothing could have prepared her for the night she was about to have... She called me to tell me that Braden's O2 saturation (sats) kept dropping, so I walked her through suctioning him good. She called back about 15 min later, saying his sats were staying in the 40s and 50s, and suctioning was not helping. I was a little panicked, thinking maybe some phlem got lodged in his throat, blocking the airway, so I had her pound him on the back and keep trying to suction. Nothing was working.

I hopped in the car and was racing home - thank goodness my bible study group started praying for me as soon as I left, because knowing all the traffic laws I broke trying to get there as fast as I could - I could feel that God was protecting me. I called 911 to have them get Braden oxygen, and as soon as I got there, I flew the door open, I think I pulled one of the fire department guys out of the way like supermom, and gave him good suction, made sure his airway was open, and re-checked his foot attachment, and suddenly I noticed that his lead had come loose from his foot. As soon as I repositioned it, Braden's numbers showed us that he was just fine, and there was no need for panic. But over the phone trying to figure out what was going on, all I could think about was Braden not getting enough O2. All is fine - he was probably fine the whole time. The sitter (Stephanie) said she never saw him get blue around the mouth or face, and he wasn't acting any different, so she just wasn't sure what to do. Now we have a great story to tell about how while I was crying and driving like a maniac, the only thing that was wrong was the silly lead had come off his foot partially. We will see if Stephanie ever agrees to watch Braden again, I was sure that they were going to have to give HER oxygen amidst the madness. :-) She did great, and did everything exactly right... I am glad she was there taking care of him - as there was nothing else anyone could have done different. It was my fault for not explaining the lead could come loose! Well, it will make for a great story at social gatherings. The joys of parenthood can overwhelm me at times:-)

I have attached some pics of the little guy at christmas, and to share with you how LONG and curly his hair is getting. The pics are post-bath where it really curls up - he has some crazy hair to deal with... I thought I had bed-head in the mornings, but he takes the cake!

Thanks for all the christmas cards, the wonderful gifts, and the love you continue to send our way and lift us up in your prayers. We are ever-so grateful as we begin our 2007 journey. Love to all!

Kodi, B&B

9 comments:

Caralyn said...

I am happy to hear that you had such a wonderful Christmas vacation. Braden's hair is too cute! I love curls on a baby! You are constantly in my heart and prayers. I love you all and give Braden a big kiss from Ms. Caralyn.

Victoria said...

I am so glad you all had a great trip home! I hope his cousin got the hugs time to bond with Braden that she was hoping for!

I am very relieved to hear his seizures have decreased so dramatically and have my fingers crossed for his sweet little heart.

Love you guys and miss you terribly!
Victoria

Victoria said...

I am so glad you all had a great trip home! I hope his cousin got the hugs time to bond with Braden that she was hoping for!

I am very relieved to hear his seizures have decreased so dramatically and have my fingers crossed for his sweet little heart.

Love you guys and miss you terribly!
Victoria

Victoria said...

I am so glad you all had a great trip home! I hope his cousin got the hugs time to bond with Braden that she was hoping for!

I am very relieved to hear his seizures have decreased so dramatically and have my fingers crossed for his sweet little heart.

Love you guys and miss you terribly!
Victoria

Victoria said...

I am so glad you all had a great trip home! I hope his cousin got the hugs time to bond with Braden that she was hoping for!

I am very relieved to hear his seizures have decreased so dramatically and have my fingers crossed for his sweet little heart.

Love you guys and miss you terribly!
Victoria

shalamarie said...

Good God- You are super mom and dont lie, you break all the driving laws a lot! Just kidding. You are a GREAT mom. Kiss the chunky monkey for me! Hugs

B said...

I'm glad to see that you're back to blogging and that you had a GREAT holiday! Give little Braden a kiss! Oh, and start ramping up for the big FIRST birthday...it's just around the corner! ;-)

Yvette said...

My parents are members of Istrouma and sent me your blog. One of my 16mo old twins has intractable epilepsy, cortically blind and she is also on the Ketogenic Diet. She is currently on her 9th medication as well. If you ever need someone to talk to I would be more than happy to. My e-mail is yrreed@yahoo.com.

shala said...

Okay, so I am a bad mom. I didnt even realize that it was Paxton in the photo with Braden in front of the tree. She looks too old. It doesnt look like her! Love you